Fathi Zaghamir, D., Syan, S., Ahmed Ayed, M., Ahmed El-husseiny, H., Kamal Elshafie, W., Amin, F. (2022). Effect of Instructional Guidelines on Mothers’ knowledge, Practice and Lifestyle of their Children with Phenylketonuria. Assiut Scientific Nursing Journal, 10(31), 1-14. doi: 10.21608/asnj.2022.136589.1376
Donia Elsaid Fathi Zaghamir; Shadia Abd Elmoniem Syan; Manal Mohamed Ahmed Ayed; Hala Samir Ahmed El-husseiny; Wafaa Hamed Kamal Elshafie; Fatma Mohamed Amin. "Effect of Instructional Guidelines on Mothers’ knowledge, Practice and Lifestyle of their Children with Phenylketonuria". Assiut Scientific Nursing Journal, 10, 31, 2022, 1-14. doi: 10.21608/asnj.2022.136589.1376
Fathi Zaghamir, D., Syan, S., Ahmed Ayed, M., Ahmed El-husseiny, H., Kamal Elshafie, W., Amin, F. (2022). 'Effect of Instructional Guidelines on Mothers’ knowledge, Practice and Lifestyle of their Children with Phenylketonuria', Assiut Scientific Nursing Journal, 10(31), pp. 1-14. doi: 10.21608/asnj.2022.136589.1376
Fathi Zaghamir, D., Syan, S., Ahmed Ayed, M., Ahmed El-husseiny, H., Kamal Elshafie, W., Amin, F. Effect of Instructional Guidelines on Mothers’ knowledge, Practice and Lifestyle of their Children with Phenylketonuria. Assiut Scientific Nursing Journal, 2022; 10(31): 1-14. doi: 10.21608/asnj.2022.136589.1376
Effect of Instructional Guidelines on Mothers’ knowledge, Practice and Lifestyle of their Children with Phenylketonuria
1Lecturer of Pediatric Nursing Department, Faculty of Nursing, PortSaid University, Egypt
2Lecturer of Pediatric Nursing Department, Faculty of Nursing, Sohag University, Egypt
3Assistant Professor of Pediatric Nursing Department, Faculty of Nursing, Sohag University, Egypt
4Lecturer of Pediatric Nursing Department, Faculty of Nursing, Damietta University, Egypt
5Lecturer of Community Health Nursing Department, Faculty of Nursing, Mansoura University
6Assistant Professor of Pediatric Nursing Department, Faculty of Nursing, Mansoura University, Egypt
Abstract
Background: Phenylketonuria is an autosomal recessive condition in which phenylalanine accumulates in the blood and bodily fluids due to a lack of Phehydroxylase activity. The studyaimed to evaluate the effect of instructional guidelines on mothers’ knowledge, practice and lifestyle of their children with phenylketonuria. Design: A quasi-experimental research design was utilized to achieve the study's aim. Setting: The study was conducted at genetic counseling clinic in the basic health care unit at Sohag City affiliated to the Ministry of Health (MOH). Sample: A purposive sample included 100 mothers accompanied by their children with Phenylketonuria. Tools: Two tools were used: Tool I: Mothers’ knowledge and reported practice regarding phenylketonuria: a structured interview questionnaire was utilized and Tool II: Children’s lifestyle assessment questionnaire. Results: The study revealed that there was a statistically significant improvement in post-intervention mothers' knowledge and reported practices and their children's lifestyle with phenylketonuria than pre-intervention. A statistically significant correlation detected between compliance with the prescribed diet and growth problems. No statistically significant correlation found between compliance with the prescribed diet and sleep problems. Conclusion: The study concluded that the instructional guidelines were effective in improving mothers' knowledge, reported practice, and their children's lifestyle with phenylketonuria. Recommendations: Health education program for mothers should be provided to increase their knowledge and reported practices about phenylketonuria, as well as identify the importance of a prescribed diet for children with this condition.
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