Atya, M., Thabet Mohammed, G., M.Moeen, S., Ahmed, G. (2024). Effect of Structured Education Booklet on Self-efficacy, Self-care practices and Health-Related Quality of Life in Adults with Sickle Cell Disease. Assiut Scientific Nursing Journal, 12(46), 293-305. doi: 10.21608/asnj.2024.315472.1893
Manal Sayed Atya; Ghada Thabet Mohammed; Sawsan M.Moeen; Ghada Hassan Ahmed. "Effect of Structured Education Booklet on Self-efficacy, Self-care practices and Health-Related Quality of Life in Adults with Sickle Cell Disease". Assiut Scientific Nursing Journal, 12, 46, 2024, 293-305. doi: 10.21608/asnj.2024.315472.1893
Atya, M., Thabet Mohammed, G., M.Moeen, S., Ahmed, G. (2024). 'Effect of Structured Education Booklet on Self-efficacy, Self-care practices and Health-Related Quality of Life in Adults with Sickle Cell Disease', Assiut Scientific Nursing Journal, 12(46), pp. 293-305. doi: 10.21608/asnj.2024.315472.1893
Atya, M., Thabet Mohammed, G., M.Moeen, S., Ahmed, G. Effect of Structured Education Booklet on Self-efficacy, Self-care practices and Health-Related Quality of Life in Adults with Sickle Cell Disease. Assiut Scientific Nursing Journal, 2024; 12(46): 293-305. doi: 10.21608/asnj.2024.315472.1893
Effect of Structured Education Booklet on Self-efficacy, Self-care practices and Health-Related Quality of Life in Adults with Sickle Cell Disease
1Lecturer of Medical Surgical Nursing, Faculty of Nursing, Assiut University, Egypt
2Assistant Consultant of Medical Surgical Nursing, Assiut University Hospitals, Assiut University, Egypt.
3Associate Professor of Internal Medicine, Clinical Hematology, Faculty of Medicine, Assiut University, Egypt
4Assistant Professor of Medical Surgical Nursing, Faculty of Nursing, Assiut University, Egypt.
Abstract
Background: Sickle Cell Disease (SCD) is a chronic disorder that has an impact on a patient’s quality of life. A structured education booklet has the potential to affect self-efficacy, self-care practices and subsequently better quality of life. Aim: To investigate the effect of structured education booklet on self-efficacy, self-care practices and health related quality of life in adult patients with sickle cell disease.Design: Pre experimental one group (pretest-posttest) design. Top of FormBottom of FormSetting: Inpatient and outpatient clinic, Clinical Hematology Unit, Department of Internal Medicine Assiut University Hospital. Study subjects: Purposive sample of forty adult patients with sickle cell disease of both sexes were included in the study and followed up for 3 months. Data collection tools: (I) structured interviewing questionnaire, (II)Sickle Cell Self-Efficacy Scale, (III) Self-care practices assessment sheet (a-Jeanerette Self-care Assessment Tool, b-The 24-item Appraisal of Self-care Agency Scale) and (IV)Adult Sickle Cell Quality of Life Measurement Information System. Results: The mean score of self-efficacy (14.25±2.78Vs.30.22±3.37), self-care practices measured as self-care actions (20.2±1.4Vs. 27.55±1.65), perceived self-care ability (65.9±4.1 Vs. 97.25±11.3), and health-related quality of life improved significantly when compared to the pre-structured education (p < 0.001**). Conclusion: Structured education booklet improved patient’s self-efficacy, self-care practices, hence improving QOL in SCD patients. Recommendation: The study findings underscore the significance of implementing structured education booklet as an integral component of management of individuals with sickle cell disease as a means of enhancing self-efficacy, care practices and health-related quality of life.